• Caffeine? Why Doesn’t It Work For Me?

    Hello Everyone!! Happy Friday! I’ve tried all different types of coffee in order to stay awake, before and after I’ve been diagnosed with narcolepsy. I’ve tried Starbucks, Dunkin, Chick fil a, Mcdonalds, ect. I can’t seem to get caffeine to work for me. I know that caffeine blocks adenosine, a chemical in your brain that…

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  • Medication I took Before And After Narcolepsy Diagnosis

    Hello all! I apologize for the inconsistent posts as I’ve been feeling rather depressed recently, but I hope to make more posts here. I took a lot of different medications before my narcolepsy diagnosis especially for my bipolar disorder. To name one, I took hydroxizine largely for sleep. Although hydroxizine was supposed to be used…

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  • Common Narcolepsy Stigma I’ve Received/Experienced

    Hello! Long time no see. I’ve been slow to post lately because I’ve been dealing with my tardive dyskinesia and going on vacation. Anyway, posts are back now! As it says in the title, I will be talking about common narcolepsy stigma I’ve experienced. I think some of these individuals are coming from the right…

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  • How the combination of Lumryz and an antipsychotic caused me to develop Tardive Dyskinesia

    Hello everyone! This post is a little different. It’s not explicitly related to narcolepsy, rather more so in combination with bipolar disorder. I am diagnosed with bipolar disorder type 2, and I took an antipsychotic along with a mood stabilizer to treat it. However, once I was diagnosed with narcolepsy and started taking Lumryz, a…

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  • Sleep Routine and Sleep Experience Before and After Medication

    Hello everyone! I’d thought I’d talk about how I’d experience sleep and how I would wind down for sleep, and how that’s different before and after being medicated. For a little information about my medication, I am on a sodium oxybate called Lumryz. There are other sodium oxybate medications like Xywav and Xyrem, but their…

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